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6/5 Priyadarshani East, Supela, Bhilai, (C.G.), India


About AMDS India

The Ayush Samiti / About AMDS India

Ayush Muscular Dystrophy Society India

The aim of the Ayush Samiti is to promote evidence based Ayurvedic treatment. The Samiti believes that Ayurveda has ability to treat many chronic diseases including metabolic and genetic disorders. The Ayush Samiti has initiated several specialty Ayurvedic Clinics viz (i) Care through Research on Muscular Dystrophies, (ii) Spinal Muscular Atrophy, (iii) Parkinson’s Disease, (iv) (4) Autism, Cerebral Palsy and mentally challenged children and (v) Mitochondrial Diseases. Dr Mukesh Jain is currently Ayurvedic head of the Ayush Clinic on Neuro-muscular Diseases in Bhilai India.

A number of families of afflicted children and adults are registered with AMDS India, which is involved in helping families with information about all aspects of NMD including Ayurvedic Treatment, Yoga, physiotherapy, diet, monitoring the breathing, and updates about what is new in the form treatments that may be in the pipeline.

Supportive care is essential to preserve muscle activity, to allow for maximal functional ability, and to prolong the patient's life expectancy.

The primary concerns include prevention and correction of skeletal abnormalities, such as scoliosis, foot deformities, and contractures, to maintain ambulation. In order to improve QoL and to prolong life expectancy, Lungs and cardiac complications are the other main concern.

The Patients are diagnosed by modern methods. Ayush specialists then carry out a family support based rehabilitation program, which increases the duration of the ambulatory stage. Ayurvedic treatment agenda has been developed wherein patient’s care taker is also actively involved in the rehabilitative programs at a special Ayush clinic. This integrative holistic approach has proven to be efficient to improve symptoms, increase mobility and to lengthen life. Ayush approach has been proven to be more beneficial to the families and is being explored further.

Ayurveda considers dystrophy condition as Mamsa-Vata-kshaya related to beeja dosha and impairment of Mamsagni (muscle enzyme). The pathology involves gradual deletion of Vata energy and subsequent degeneration of muscles and structures related to it. Ayurvedic treatment might slow or stop the progression of muscle degeneration. A combined strategy of Til-Mash Pinda procedure, physiotherapy and Mamsagni Rasayana, Sukumar Guggul along with Yogic support is found effective in the (i) prevention of contracture, (ii) maintenance of muscle strength and (iii) preservation of respiration. Researchers have shown a fall in serum CPK level and improved functional abilities. It suggests that there is check on further muscle destruction.

New research is focusing on the protein NF-kappa B and sphingolipids, which may be interfering with muscle regeneration. Ayurvedic Rasayana molecules target multiple pathogenic pathways simultaneously. Mamsagni molecules block these factors thus preventing inflammation and further destruction of nerve and muscle fibres. Rasayana molecules should be considered as strong candidates for the long term treatment of NMD including muscular dystrophies.

TMP procedure is a specialized trans cutaneous nutrition to the muscle fibres.

It is a gentle herbal massage using extract of Asparagus racemosus, Sida cordifolia, Withania somnifera, Vitex negundo, curcuma indica, Cyperus rotundus and Soymida febrifuda as additional ingredients to sesame seeds, black lentil, unpolished rice and wheat bran, all cooked in milk. TMP procedure helps to stabilize the Sarcolemma membrane defect in the muscle fibres. It boosts muscle power and thus increases function ability.

The Yogic support is focused to balance biological life forces being carried by the genetic material.

Many factors in DMD contribute to the tendency for joints to get tight or ``contracted``. These include the muscle becoming less elastic due to limited use and positioning or because the muscles around a joint are out of balance (one stronger than another). Maintaining good range of movement and symmetry at different joints is important. Management of muscle extensibility and joint contractures is a key part of rehabilitation. The goal of stretching is to preserve function and maintain comfort. The program of stretching will be monitored by the physiotherapist but needs to become part of the family's yoga daily routine.The Yogic support is focused to balance biological
life forces being carried by the genetic material. It comprises of selected series of Pawanmuktasana and practice of deep breathing (Pranayama).

Sprouted seeds encourage good bacteria to thrive in the body and keep the colon clean.

Recommended quantity of sprouted :-

Mung (Phaseolus aureus) 20 Gms

Chana (Cicer arietinum) 10 Gms.

Methi (Fenugreek Seeds) 5 Gms

Ajwain (Tachyspermum copticum) 1 Gm.

Add slices of fine chopped onion, tomato, green coriander, ginger, black pepper and lime juice.

Eat this power breakfast twice or thrice in a week.

DISCLAIMER: This information is not intended to replace the services of a specialist doctor. This advice should be taken in conjunction with medical advice from your doctor, whom you should consult in all matters relating to your health, in particular with respect to symptoms that may require diagnosis or medical attention.

Keep a copy of your son's latest breathing tests to show any doctor who takes care of him.

Your son should never be given inhaled anaesthesia or the drug succinylcholine.

Your son's lung function should be checked before surgery. It is good to pick up silent problems so that they can be treated promptly

Your son will need help with coughing and antibiotics if he has a chest infection

Boys and young men with DMD have weak bones, especially if they are taking steroids.

It is important for your son to have the right amount of calcium and vitamin D to help keep his bones strong.

The doctor should watch your son's spine closely after he stops walking, especially while he is still growing, as scoliosis can change quickly.